> ## Content Index > Fetch the complete content index at: https://www.whiteroseintelligence.com/llms.txt > Use this file to discover other available public pages before exploring further. # Friends of the National Center on Birth Defects and Developmental Disabilities - URL: https://www.whiteroseintelligence.com/friends-of-the-national-center-on-birth-defects-and-developmental-disabilities/ - Published: 2026-07-20T17:43:00.000Z - Updated: 2026-07-20T18:00:36.000Z - Author: Liam Sturgess - Tags: Profiles, #docs, Organization, #toc, United States, Non-Profit, Healthcare, Government **Friends of the National Center on Birth Defects and Developmental Disabilities**, previously known as the **External Partners Group (EPG)**, is an American public-private partnership associated with the National Center on Birth Defects and Developmental Disabilities (NCBDDD).[\[1\]](#fn1)[\[2\]](#fn2) ## Personnel | Name | Position | Notes | | ---------------------- | ------------------------------------------------------ | --------------------------------------------------------------------------------------------------------------------------------------------------- | | Rebecca Abbott | Executive Committee Chair[\[3\]](#fn3) | March of Dimes | | Alan Brownstein | Executive Committee member (former)[\[4\]](#fn4) | National Blood Clot Alliance (NBCA) | | Joseph Canose | Executive Committee Vice Chair (former)[\[4:1\]](#fn4) | Christopher & Dana Reeve Foundation | | Tanisha Clarke | Communications Chair | [Association of University Centers on Disabilities](https://www.whiteroseintelligence.com/Association-of-University-Centers-on-Disabilities) (AUCD) | | Diana Felner | Membership Chair | Tourette Association of America | | Adriane Griffen | Immediate Past Chair | [Association of University Centers on Disabilities](https://www.whiteroseintelligence.com/Association-of-University-Centers-on-Disabilities) (AUCD) | | Lee Grossman | Executive Committee member (former)[\[5\]](#fn5) | Autism Society of America | | George Jesien | Immediate Past Chair (former)[\[5:1\]](#fn5) | [Association of University Centers on Disabilities](https://www.whiteroseintelligence.com/Association-of-University-Centers-on-Disabilities) (AUCD) | | Russell Kirby | Executive Committee Chair (former)[\[5:2\]](#fn5) | National Birth Defects Prevention Network (NBDPN) | | Gloria Krahn | Executive Committee member (former)[\[5:3\]](#fn5) | Oregon Health & Science University (OHSU) | | Craig Mason | Executive Committee member (former)[\[4:2\]](#fn4) | National Birth Defects Prevention Network (NBDPN) | | Judy Meehan | Executive Committee member (former)[\[5:4\]](#fn5) | National Healthy Mothers, Healthy Babies Coalition | | Carolyn Mullen | Executive Committee member (former)[\[5:5\]](#fn5) | March of Dimes | | Eileen Ouellette | Executive Committee member (former)[\[5:6\]](#fn5) | [American Academy of Pediatrics](https://www.whiteroseintelligence.com/American-Academy-of-Pediatrics) (AAP) | | Jennifer Bolden Pitre | Executive Secretary[\[6\]](#fn6) | Family Voices | | Clarke Ross | Executive Committee member (former)[\[5:7\]](#fn5) | Children and Adults with Attention-Deficit Hyperactivity Disorder (CHADD) | | Sara Struwe | Vice Chair | Spina Bifida Association | | Judit Ungar | Executive Committee member (former)[\[4:3\]](#fn4) | Tourette Association of America | | Dan Whiting | Secretary | National Fragile X Foundation | | Emil Wigode | Executive Committee member (former)[\[4:4\]](#fn4) | March of Dimes | | Patricia Wright | Executive Committee member (former)[\[4:5\]](#fn4) | Easter Seals | | Jane Correia | Member-at-Large | National Birth Defects Prevention Network (NBDPN) | | Amy Haddad | Member-at-Large | Association of Maternal and Child Health Programs | | Peggy Helm-Quest | Member-at-Large | Wisconsin Department of Health Services | | Pat Johnson | Member-at-Large | [American Academy of Pediatrics](https://www.whiteroseintelligence.com/American-Academy-of-Pediatrics) (AAP) | | Rick Rader | Member-at-Large | Orange Grove Center | | Roberta Carlin | Champion[\[7\]](#fn7) | American Association on Health and Disability (AAHD) | | Randy Fenninger | Champion | National Blood Clot Alliance (NCBA) | | Jeannette Mejias | Champion | SPAN Parent Advocacy Network | | Jennifer Pineo | Champion | \- | | Sheri Romblad | Champion | \- | | Alison Singer | Champion | Autism Science Foundation | | Courtney Stinnett | Champion | Sickle Treatment and Outcomes Research in the Midwest (STORM) | | Kayte Thomas | Champion | \- | | Katie Verb | Champion | Hemophilia Federation of America | | Crystal Bells | Family Liaison[\[6:1\]](#fn6) | Missouri Family to Family | | Brigit Frank | Family Liaison | Family Voices of Wisconsin | | Sondra Gilbert | Family Liaison | Kentucky Family to Family Health Information Centers (KYF2F) | | Artila Mims | Family Liaison | Arc of Illinois | | Nicole Pratt | Family Liaison | SPAN Parent Advocacy Network | | Deepa Srinivasavaradan | Family Liaison | SPAN Parent Advocacy Network | ## Members Members of Friends of NCBDDD include:[\[1:1\]](#fn1) ### Organizations - Alpha-1 Foundation - American Academy of Audiology - American Academy of Child and Adolescent Psychiatry - American Academy of Nurse Practitioners - [American Academy of Pediatrics](https://www.whiteroseintelligence.com/American-Academy-of-Pediatrics) (AAP) - American Academy of Physical Medicine and Rehabilitation - American Association on Health and Disability - American Cleft Palate-Craniofacial Association - American College of Obstetricians and Gynecologists - [American College of Preventive Medicine](https://www.whiteroseintelligence.com/American-College-of-Preventive-Medicine) - American Music Therapy Association - American Psychological Association - American School Health Association - [American Society of Hematology](https://www.whiteroseintelligence.com/American-Society-of-Hematology) - [American Society of Human Genetics](https://www.whiteroseintelligence.com/American-Society-of-Human-Genetics) - American Speech-Language-Hearing Association - American Thrombosis and Hemostasis Network - Amputee Coalition of America - The Arc - Association of Maternal and Child Health Programs (AMCHP) - Association of Public Health Laboratories - Association of State and Territorial Health Officials - [Association of University Centers on Disabilities](https://www.whiteroseintelligence.com/Association-of-University-Centers-on-Disabilities) (AUCD) - Audiology HEARS - Autism Society - Autism Research Institute - Autism Spectrum Disorder Risk Alert (ASDRA) - Autism Speaks - Baby Builders - Bazelon Center for Mental Health Law - B&D Consulting - Brain Injury Association of America - Breast Health Access for Women with Disabilities (BHAWD) - Brenau University - Bronx-Lebanon Hospital Center - California AgrAbility - Cavarocchi-Ruscio-Dennis Associates - Charcot Marie Tooth Association - Children and Adults with Attention-Deficit Hyperactivity Disorder (CHADD) - Christopher & Dana Reeve Foundation - CityMatCH - Cooley's Anemia Foundation - Daniella Maria Arturi Foundation - Diamond Blackfan Anemia Registry - Easter Seals - EP Foundation for Education (EPFE) - EP Global Communications - Epilepsy Foundation - Essential Therapy Services - Exceptional Children's Assistance Center (ECAC) - Exceptional Parent Magazine - Family Voices - First Candle - First Signs - Florida Newborn Screening - Hawaii MCH LEND Program - Hemophilia Federation of America - HHT Foundation International - Hope and Light Foundation - Holland & Knight - Indiana University School of Medicine - Jefferson Medical College - Kennedy Krieger Institute - Lakeshore Foundation - Learning Disabilities Association of America - Lutheran Services in America-Disability Network - March of Dimes - Marcus Autism Center - Massachusetts Department of Public Health - Mental Health America - Metro Nashville Public Health Department - Mothers & Babies Perinatal Network - Mothers' Milk Bank at Austin - Muscular Dystrophy Association (MDA) - National Blood Clot Alliance - National Association of Councils on Developmental Disabilities - National Association of County and City Health Officials (NACCHO) - National Association of County Behavioral Health and Developmental Disability Directors - National Association of Pediatric Nurse Practitioners (NAPNAP) - National Birth Defects Prevention Network - National Center for Emerging and Zoonotic Infectious Diseases (NCEZID) - National Center for Learning Disabilities - National Center on Birth Defects and Developmental Disabilities (NCBDDD) - National Conference of State Legislatures - National Down Syndrome Congress - National Healthy Mothers, Healthy Babies Coalition - National Hemophilia Foundation - National Indian Justice Center - National Marfan Foundation - National Multiple Sclerosis Society - National Organization on Fetal Alcohol Syndrome - New York State Department of Health - National Institute of Mental Health (NIMH) - Nemours Children's Hospital, Delaware - Ohio Department of Health - PACER Center - Parent Project to End Muscular Dystrophy - Research and Training Center on Disability in Rural Communities - Research and Training Center on Independent Living - Rhode Island Department of Health - Rhode Island Parent Information Network - Riley Hospital for Children - RTI International - Seattle Children's Research Institute - Slippery Rock University - Sonnenschein Nath & Rosenthal - Special Olympics International - Spina Bifida Association - Stop CMV - The CMV Action Network - TASH - Teratogen Information System (TERIS) - Tourette Syndrome Association - Trisomy 18 Foundation - Tuberous Sclerosis Alliance - United Cerebral Palsy - University of Colorado - University of Iowa - University of Maine - University of New Mexico (UNM) - University of Oklahoma Health Sciences Center - Ural State Medical University - Venous Disease Coalition - Virginia Board for People with Disabilities ### Individuals - Brian Altman - Marlene Anderka - Adeline Barwick - Priya Chandan - Jane Charles - Tracy Colletti-Flynn - Julie Cross Riedel - Pat Furlong - Raymond Glazier - Malorie Hensley - Hilary Hansen - Cindy Ingham - Reena Kothari - Lynn Midgette - Kathy Northrop - Theresa Paeglow - Clarke Ross - Jessica Seay - Angela Stewart - Rob Wild - Barbara Kornblau - Alison Standring - Garth Tymeson - Jack Toomey ## External links - [Website](https://friendsofncbddd.wordpress.com/) --- 1. *Friends of the National Center on Birth Defects and Developmental Disabilities.* (2011). Friends of the National Center on Birth Defects and Developmental Disabilities. [↩︎](#fnref1) [↩︎](#fnref1:1) 2. National Center on Birth Defects and Developmental Disabilities. (2008, January 7). *NCBDDD External Partners.* Centers for Disease Control and Prevention. [↩︎](#fnref2) 3. *Executive Committee 2020.* Friends of NCBDDD. Retrieved July 4, 2024, from [↩︎](#fnref3) 4. *About Us.* Friends of NCBDDD. Retrieved February 20, 2011, from [↩︎](#fnref4) [↩︎](#fnref4:1) [↩︎](#fnref4:2) [↩︎](#fnref4:3) [↩︎](#fnref4:4) [↩︎](#fnref4:5) 5. *About Us.* External Partners Group. Retrieved June 22, 2009, from [↩︎](#fnref5) [↩︎](#fnref5:1) [↩︎](#fnref5:2) [↩︎](#fnref5:3) [↩︎](#fnref5:4) [↩︎](#fnref5:5) [↩︎](#fnref5:6) [↩︎](#fnref5:7) 6. *The NCBDDD Family Liaisons.* Friends of NCBDDD. Retrieved November 28, 2024, from [↩︎](#fnref6) [↩︎](#fnref6:1) 7. *Friends as Champions.* Friends of NCBDDD. Retrieved November 28, 2024, from [↩︎](#fnref7)